July 16, 2008

I've resumed morning bike rides

A quick note to say I feel very good!! I have recently revived my morning bicycle rides with my son! We have ridden for 6 miles on a lot of the mornings recently. I am excited to report that other than a little "burn" in my leg muscles during the ride, I feel great!!

Richard and I have been approached by a gentleman from the Student Nurses Association who wants us to address a convention of a lot of future nurses. We jumped at the chance to do so and provide future medical staff with our personal experiences with the benefits of stem cells.

Thanks in part to a lot of "word of mouth advertising" a neurologist near The Woodlands, TX., wants Richard and I to come down so he can see for himself all the benefits of the treatment. This neurologist has said the cure for a number of autoimmune diseases will be from stem cells. I hope he will become an advocate for the potential of stem cells and help us provide evidence for some meaningful legislation at the state and national level.

-- Preston

July 13, 2008

Laminectomy

I held back and held back, but my neck, left shoulder, arm and hand forced me into a laminectomy to relieve the pain that showed up once the MS was held back a little. The results are again great.

I instantly I came back to earth, the pain was -- and is -- completely vanished.

Now it gets even better. Thursday I went back to the audiologist, and she reduced my hearing aid volume in my left ear down another level. That is 4 levels in the last 4 weeks.

The clinic again checked to make sure it was in complete working order, which it was, and basically they can't explain how someone's hearing can improve. The Lord can.

- Richard

June 23, 2008

I am still feeling great!

I felt a need (i guess) to test my level of heat tolerance today.  Okay, a bad joke... but I ran radar today from 10 a.m. to 1 p.m. without any problems.    It was hot!!  But, I kept fluids running through me and didn't have Issue One with the heat!!      
 
Take Care

June 18, 2008

Still feeling like a million bucks!

I am still feeling like a million bucks!! 
However, I have reconsidered my stance on taking medication for my MS.  Hopefully, you will remember my original stance on the medication.  I stopped taking it, all of it!!
I recently resumed the Avonex injections.  As I understand it, the stem cells were halting the progress of the MS.  Avonex is just another weapon I decided to begin using again to keep the MS at bay.

--Preston

June 11, 2008

Still feeling better

Preston and I started feeling so much better starting May 16th after our second stem cell injection, and we are still feeling well.

The fatigue is significantly lessened. It has been such a long time since I slept normal hours. Last week
I spent 58 hours sleeping, whereas before stem-cell treatments, I slept around 80 hours a week. It is taking me awhile to get used to this energy.

I used to stumble around 20 times a day and now for the last 25 days it has dropped to
5 times. Not 5 times a day but a total of 5 for the 25-day period. I probably stumbled like that before MS.

Before the stem-cell treatment period, I would fall at least once every other day.  I bet more than a few people thought I had a few to many beers.

Cognition is more clear. I'm not sure how to describe it, but the fog is lifting.

Now here is the kicker. The three weeks prior to May 16th, I took 147 pain pills and 147,000 mg. of tylenol and aspirin and ibuprofen.

Yes, all three at 147,000 mg. each. When you are hurting that bad, after awhile, you don't care. You just want a break and this was only giving me a little pain relief. Since May 16th...ZERO. YIPPEEEE!!

In the back of our minds we wonder when will this quality of life fall off, but it has not and we are enjoying this so much. Thank you Lord.

Richard

I am very excited to tell everyone that I have not had any changes from last post or a "reversal of fortune."

Thanks for checking!

Preston

June 04, 2008

Update from Richard

I guess I had forgotten about what the quality of life was all about. It sure is nice to have some!

I still have MS and pace myself accordingly, but I only take vitamins daily. On May 1, I was using a cane. On June 1, I played golf. For the first time in years I could actually feel the golf club in my hands. WOW!

The heat still affects us but a day out once in awhile it is GREAT!

Cognition, coordination and spasticity are still tremendously better I am happy to say.

No pain pills!

Richard

rdhump1@hotmail.com

June 02, 2008

Update from Preston

I am still feeling great!

I am keeping up with the exercises from physical therapy.  I have also been outside a few times and haven't had any heat intolerance issues.

If anyone wants me to email the exercises to them, let me know.  The instructions are in Spanish but are accompanied by illustrations.  My personal email address is pwalker2644@sbcglobal.net

May God bless and keep you!

Preston

May 27, 2008

Fleas on my middle toe?

I am still feeling well. I did not know the days were this long. When you average 11-12 hours a day sleeping and back to 8.

It is a unique situation. My spinal cord after the last treatment felt hot. Today it is still feels warm. My left middle toe started itching and it is still itching. Maybe that toe has fleas?

Before this started I had zero feeling with all 10 toes. My left little toe is normal and the middle with fleas. My hands also have more feeling. I would stumble and occasionally fall about 20 times a day and now I have stumbled 3 times in 11 days.

I feel different in this skin. I'm not sure what it is but the quality of life has improved. I feel like I watching 20/20 or 60 minutes except I'm in the show instead of watching.

Thank you Lord Jesus,

Richard

Our return

On Saturday, Richard and I returned from Costa Rica and were met by our loving wives and folks from a local MS support group, of which I am a member.  What a homecoming! 

Richard and I felt we came full circle from the men we were just 15 days ago! 

The therapists at Cima hospital gave us some exercises to continue working on our flexibility.  The head therapist said the exercises will complement the work of the stem cells.  We will be doing everything possible to ensure our health is continually improving.    

We are greatly appreciative of the time it took for you to review the blog and post the comments.  We always felt this was a venue for sharing some valuable information for we victims of MS and other diseases.  We hope we accomplished our goal. 

If you have MS or some other health issue, we hope you are going to be proactive and try something before your health deteriorates any further.  I would strongly encourage each of you to avoid a time when you are looking in the rear view mirror and wondering what could have been. 

If ICM is not your choice, conduct a lot of research, talk to some former patients and talk with the physicians in charge of your treatment.  Make your best decision and GO FOR IT! 

We will continue to post to this blog on a weekly basis so you may have all of the information available from our standpoint.  We can't say this is a cure but we would both do this again ........tomorrow if needed.

If anyone is interested in talking with me personally, feel free to email me at pwalker2644@sbcglobal.net 
Take care,

Preston

May 23, 2008

How our experimental treatments began

The faith we have in Jesus led Preston and I together, showing us the way to Costa Rica.

After listening to all the physicians here, we feel the ICM clinic is ahead of the world in their treatments. They virtually know the stem cell clinics across the world. Several confide in ICM to manage their own clinic.

One of the first physicians hired here was from the China clinic, but he was terminated because of his lack of patient care. These physicians are cutting edge, as are the two treatments they're trying on us that have never been tried before.

The doctors were 100 percent confident the treatments would work but refused to try it on any patients until the right ones came in. Then Preston and I arrived and happen to catch the three main physicians and the owner, who has a doctorate in biology and years of in-depth work in cells.

It was the opportunity to push them.

This push to them came to me in a prayer two weeks before we left. So in our impromptu first day meeting I asked if they have something new they wanted to try. I could see the face of the owner; his wheels were churning,  but he really did not say  much.

So I pushed a second time, stating that we are available for you to try an extended or more intense treatment, for this would not only help us but other future patients as well. So then I looked at Preston and he gave me an OK nod. Give Preston credit; he is here with me to help others for the long haul.

I know the owner was thinking, "Who is this old nursing home administrator guy volunteering me into unknown treatments with people I just met. I know he has MS but he is also crazy."

I gave it a third try: I told them we are here to receive a stem cell treatment but are offering ourselves for your experimental treatments.

By now the physicians are silent, thinking so deeply on what may lay ahead and how to make it work. So I gave them the clincher.

I looked the owner square in his eyes and told him, "The only thing stopping you is you."

That was it. He started talking to us about the fat-derived stem cells that would be extracted out of our bodies, cleaned many different ways for five days and re-introduced back into our bodies with other chemicals, injecting us with 60 million stem cells. If successful this would shut down the overly active immune cells.

One of the physicians said, "I don't see how it can't work."

I looked at Preston; again he told us OK.

The physicians started talking  on how to proceed with this. A new treatment was developed and another one revised so we could have both during our 13-day stay. We offered to stay longer if needed.

The owner said let's see if we can make this work in the time you are here.

So this is how this immune stem cell treatment was developed and 10 doses of intrathecal stem cell injections in 5 administrations.

Both had never been tried before, according to the ICM clinic owner, who has his hand on the pulse of stem cell clinics and hospitals worldwide.

This did not happen by luck. God led us, so we simply listened and followed. Really nothing more.

In Him,

Richard

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